"Som erfarenhetsforskare, då är man med och bestämmer i forskningsprojektet"
- en autoetnografisk studie om en gemensam forskningsprocess
DOI:
https://doi.org/10.3384/SVT.2022.29.3-4.4673Nyckelord:
participatory research, participatory design, co-creative processes, implementation, epistemic injusticeAbstract
'As a community researcher, you get to make decisions in the research project’ – an autoethnographic study about a joint research process
In a participatory action research project, we emphasize experiences of collaboration between academic and community researchers by applying analytical autoethnography. The aim of the article is to describe the research process which involves both individual and collaborative processes, and to analyze challenges in relation to participation in the ongoing research process. We identified four themes: Start-up and initial challenges, Conditions and structural prerequisites for collaboration, Joint development of work methods and Power and role distribution. Our findings are presented in two separate analyses; a collaborative inductive analysis and an academic led theoretical analysis in which Arnstein’s ladder of participation and Fricker’s concept of epistemic injustice are utilized in order to scrutinize challenges related to different degrees of participation in the research process. The results demonstrate that shared hermeneutic resources are necessary for the mitigation of epistemic injustice and enablement of mutual learning processes, such as collective writing processes. The results also indicate that a full participation for community researchers in the entire research process was difficult to achieve, both in relation to structural resources such as allocated time, and in relation to perceptions of meaning- making aspects, for example, individual interests and contributionsin terms of knowledge.
Nedladdningar
Referenser
Abama, T. A., Cook, T., Rämgård, M., Kleba, E., Harris, J. & Wallerstein, N. (2017). Social impact of participatory health research: collaborative non-linear processes of knowledge mobilization. Educational Action Research, 25(4), 489–505. DOI: https://doi.org/10.1080/09650792.2017.1329092
Adams, T. E., Holman Jones, S & Ellis, C. (2015). Autoethnography: understanding qualitative research. Oxford University Press.
Adili, F., Higgins, I. & Koch, T. (2012). Inside the PAR group: the group dynamics of women learning to live with diabetes. Action Research, 10(4), 373–386. doi: 10.1177/1476750312456710 DOI: https://doi.org/10.1177/1476750312456710
Anderson, L. (2006). Analytic autoethnography. Journal of Contemporary Ethnography, 35 (4), 373–395. DOI: https://doi.org/10.1177/0891241605280449
Arnstein, S. R. (1969). A ladder of citizen participation. Journal of the American Planning Association, 35(4), 216–24. DOI: https://doi.org/10.1080/01944366908977225
Bertilsdotter Rosqvist, H., Elmersjö, M. & Kings, L. (2021). Aktionsforskning. I: H. Bertilsdotter Rosqvist, M. Elmersjö & L. Kings (red.), Aktionsforskning: möjligheter, utmaningar och variationer. Studentlitteratur.
Bombard, Y., Baker, G. R., Orlando, E., Fancott, C., Bhatia, P., Casalino, S., Pomey, M. P. (2018). Engaging patients to improve quality of care: a systematic review. Implementation Science, 13(1), 98. doi: 10.1186/s13012-018-0784-z DOI: https://doi.org/10.1186/s13012-018-0784-z
Brett, J., Staniszewska, S. Mockford, C., Herron-Marx, S. Hughes, J. Tysall, C. & Suleman, R. (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review. HEX, 17(5), 637–650. DOI: https://doi.org/10.1111/j.1369-7625.2012.00795.x
Brydon-Miller, M., Greenwood Cornell, D. & Maguire, P. (2003). Why action research? Action Research, 1(1), 9–28. DOI: https://doi.org/10.1177/14767503030011002
Chang, H. (2008). Autoethnography as method. Left Coast Press.
Charalambous, M., Kountouri, A., Phylactou, P., , I., Annoni, J-M. & Kambanaros, M. (2022). The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis. Research Involvement & Engagement, 8, 48. https://doi.org/10.1186/s40900-022-00379-1 DOI: https://doi.org/10.1186/s40900-022-00379-1
Driver, S., McShan, E., Swank, C., Grobe, K., Calhoun, S., Bailey, R. & Kramer, K. (2020). Creating an appropriate adaptation of a healthy lifestyle intervention for people after stroke. Brain Injury, 34(11), 1497–1503. doi: 10.1080/02699052.2020.1808703 DOI: https://doi.org/10.1080/02699052.2020.1808703
Ellis, C. & Bochner, A. P. (2000). Autoethnography, personal narrative, reflexivity. I: N. K. Denzin & Y. S. Lincoln (red.), Handbook of qualitative research (2 uppl.) (s.733–768). Sage.
Freire, P. (2021). De förtrycktas pedagogik, Trinambi. Översättare: Nadia Alves. Pedagogia de oprimado.
Fricker, M. (2007). Epistemic injustice: power & the ethics of knowing. Oxford University Press. DOI: https://doi.org/10.1093/acprof:oso/9780198237907.001.0001
Gallacher, L-A. & Gallagher, M. (2008). Methodological immaturity in childhood research? Thinking trough ”participatory methods”. Childhood, 15(4), 499–516. DOI: https://doi.org/10.1177/0907568208091672
Gaventa, J. & Cornwall, A. (2008). Power and knowledge. I: P. Reason & H. Bradbury (red.), The Sage handbook of action research, participative inquiry and practice (red.) (2 uppl.), s. 172–190. Sage Publications. DOI: https://doi.org/10.4135/9781848607934.n17
Hammel, J., Jones, R., Gossett, A. & Morgan, E. (2006). Examining barriers and supports to community living and participation after a stroke from a participatory action research approach. Topics in Stroke Rehabilitation, 13(3), 43–58. doi: 10.1310/5X2G-V1Y1-TBK7-Q27E DOI: https://doi.org/10.1310/5X2G-V1Y1-TBK7-Q27E
Hillén, S. (2013). Barn som medforskare: en metod med potential för delaktighet. Doktorsavhandling. Institutionen för kulturvetenskaper, Göteborgs universitet.
Kensing, F. & Greenbaum, J. (2012). Heritage: having a say. I: Routledge international handbook of participatory design (s. 21–36). Routledge. (2) (pdf) Participatory design and design for values. DOI: https://doi.org/10.4324/9780203108543-7
Krieger, T., Feron, F. & Dorant, E. (2017). Developing a complex intervention programme for informal caregivers of stroke survivors: the caregivers’ guide. Scandinavian Journal of Caring Science 31, 146–156. DOI: https://doi.org/10.1111/scs.12344
Krieger, T., Floren, M., Feron, F. & Dorant, E. (2021). Optimising a complex stroke caregiver support programme in practice: a participatory action research study. Educational Action Research, 29(1), 37–59. DOI: https://doi.org/10.1080/09650792.2019.1699131
Liabo, K, Boddy, K., Bortoli, S., Irvine, J., Boult, H., Fredlund, M., Joseph, N., Bjornstad, G. & Morris, C. (2020). Public involvement in health research: what does ”good” look like in practice? Research Involvement and Engagement, 6(11). DOI: https://doi.org/10.1186/s40900-020-0183-x
Lorentz, H. (2004). Aktionsforskning: om likheter och olikheter i användning och benämning inom pedagogisk forskning. Pedagogiska institutionen, Lunds universitet.
McKevitt, C., Fudge, N. & Wolfe, C. (2009). What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke. Health Expectations: an International Journal of Public Participation in Health Care and Health Policy, 13(1), 86–94. DOI: https://doi.org/10.1111/j.1369-7625.2009.00573.x
McNiff, J. (2002). Action research: principles & practice. Routledge/Falmer. DOI: https://doi.org/10.4324/9780203199961
Minkler, M. (2004) Ethical challenges for the ”outside” researcher in community-based participatory research. Health Education and Behavior, 31(6), 684–97. DOI: https://doi.org/10.1177/1090198104269566
Mosavel, M., Simon, C., van Stade, D. & Buchbinder, M. (2005). Community-based participatory research (CBPR) in South Africa: engaging
multiple constituents to shape the research question. Social Science and Medicine, 61, 2577–87.
Ocloo, J. & Matthews, R. (2016). From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety, 25(8), 626–632. doi: 10.1136/bmjqs-2015-004839 DOI: https://doi.org/10.1136/bmjqs-2015-004839
Rahman, M. A. (1991). Action and knowledge: breaking the monopoly with participatory action research. I: O. Fals?Borda & M. A. Rahman (red.), The theoretical standpoint of PAR (s. 13–24). Apex Press. DOI: https://doi.org/10.3362/9781780444239.003
Reason, P. & Bradbury, H. (2008). Introduction: inquiry and participation in search of a world worthy of human aspiration. I: P. Reason & H. Bradbury (red.), The Sage handbook of action research, participative inquiry and practice (2 uppl.) (s. 1–14). Sage Publications.
Schuler, D. & Namioka, A. (red). (1993). Participatory design: principles and practices. Lawrence Erlbaum Associates.
Starrin, B. (2007). Empowerment som forskningsstrategi: exemplet deltagarbaserad forskning. I: O-P. Askheim & B. Starrin (red.), Empowerment i teori och praktik. Gleerups.
Wall, S. (2006). An autoethnography on learning about autoethnography. International Journal of Qualitative Methods, 5(2), 146–160. DOI: https://doi.org/10.1177/160940690600500205
Wallerstein, N. & Duran, B. (2003). The theoretical, historical, and practice roots of CBPR. I: M. Minkler & N. Wallerstein (red.), Community?based research for health: from process to outcomes (s. 25–46). Jossey?Bass.
Young, L. (2006). Participatory action research (PAR): a research strategy for nursing? Western Journal of Nursing Research, 8, 499–504. DOI: https://doi.org/10.1177/0193945906288597
Downloads
Publicerad
Referera så här
Nummer
Sektion
Licens

Det här verket är licensierat under en Creative Commons Erkännande 4.0 Internationell-licens.
Allt material i Socialvetenskaplig tidskrift publiceras sedan 2022 (Vol 28 Nr 2) med omedelbar öppen tillgång (open access), under Creative Commons-licensen CC BY 4.0. Upphovsrätten till innehållet tillhör respektive författare.
Allt innehåll i tidskriften är fritt tillgängligt utan kostnad och får fritt läsas, laddas ned, kopieras, delas, skrivas ut och länkas. När innehållet används måste författare, källa och licens anges. Författaren kan fritt göra sin publicerade text tillgänglig på institutionella och internetbaserade arkiv, exempelvis sitt lärosätes digitala arkiv eller andra tjänster för detta.
Inga publiceringsavgifter tas ut vid publicering i Socialvetenskaplig tidskrift.